Who is most likely to get Ehlers-Danlos Syndrome?

Most are rare e.g., 1 in 40,000 – 200,000 and some are ultrarare i.e., less than 1 in a million people. Individuals of all racial and ethnic backgrounds are affected by EDS which can present with complications from birth and progress over time.

Does Ehlers-Danlos make you look younger?

Less wrinkles Due to the collagen in the skin being extra stretchy, many EDS patients experience a lack of wrinkles as they age. This collagen may help EDS patients look younger and can also cause skin to feel extremely soft. Doctor’s even describe the skin as “velvet-soft”.

Are you born with EDS?

EDS is something you are born with but symptoms may not manifest themselves until later in life. It is not uncommon for a genetic condition to first become apparent during puberty, alternatively symptoms can be triggered by a trauma, such as a virus, many years down the line.

Does EDS affect hair?

“People who have Ehlers-Danlos syndrome also suffer from thin, weak hair and bad hair growth and this began to affect me. “It is disturbing to see your hair thinning. You try to carry on as normal working, socialising and enjoying family time but you are always self-conscious about your hair.

Is Ehlers-Danlos considered a disability?

Can I Get Disability For Ehlers-Danlos Syndrome (EDS)? The answer is that Ehlers-Danlos Syndrome (EDS) can be a disabling condition, depending on how it presents. EDS is a genetic disorder affecting connective tissues and causing an array of serious physical problems, ranging from joint pain to cardiovascular issues.

Does EDS show on MRI?

MRI can help detect lesions in the brain containing collagen fibers, which are often seen in EDS patients who previously experienced trauma.

What is Ehlers-Danlos syndrome?

Ehlers-Danlos syndrome is a group of disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications.

How does Ehlers-Danlos syndrome affect stitches?

People who have Ehlers-Danlos syndrome usually have overly flexible joints and stretchy, fragile skin. This can become a problem if you have a wound that requires stitches, because the skin often isn’t strong enough to hold them.

What are the symptoms of Ehlers-Danlos hypermobility?

The most common type of the condition is Ehlers-Danlos hypermobility, or hypermobile EDS. Its symptoms include: Hypermobile (overly flexible) joints. Unstable joints. Soft skin that is thinner and stretches more than normal. Excessive bruising.

How are braces used to treat Ehlers-Danlos syndrome?

Physical therapy (exercises to strengthen the muscles supporting the joints) can help prevent joint injuries. Braces also help stabilize joints. Because blood vessels are fragile, doctors will monitor people with Ehlers-Danlos syndrome and may use medication to help keep blood pressure low and stable.